sasha_feather: Cindi Mayweather (janelle monae) (Cindi Mayweather)
[personal profile] sasha_feather
Sometimes people think they have to choose between social model of disability and medical model: all one or all the other. I believe they work best in concert. Neither model explains the entirety of the experience of disease, illness, and impairment-- perhaps nothing ever will because these experiences are so complex and involve both individual and community experiences, and the many vagaries of our human bodies.

I think that all categorization and models break down with enough analysis... our human understanding of the universe is ultimately quite poor. We stumble in the dark. We stare at shadows on the wall of a cave.
But. We can try.

The social model works for me largely because medicine has failed; there seems to be little to nothing that medicine can do for my pain and fatigue. There are no medicines beyond caffiene that treat fatigue; and I've tried many many things for pain with little benefit. What helps me most are lifestyle interventions: resting a lot, essentially. Reducing my stress way, way down. Very gentle exercise. And when I read about the social model and disability activism I feel validated, comforted, more secure. I feel my world become wider. I feel a connection to others.

Trying to pursue medical interventions feels like exercise in failure. I do go to the doctor but mostly it's to make sure nothing worse is happening to me, rather than to try and get better.

I do think that most disabled people visit the doctor and believe in the medical model to an extent: we have to deal with doctors and providers to get needed medicines and therapies. We must believe in them as a matter of survival.

I'm trained as a scientist and I worked in medicine for a long time. I understand the limits and the benefits of this realm.

What I don't see enough of, is the medical field embracing-- or even knowing about-- the social model. It would be so interesting to see what could happen if practioners listened to disabled people and learned from our expertise.

When I worked in a hospital I noticed that universal design was (perhaps ironically) apparent there, because injured and ill people are normal in a hospital setting. So there is abundant signage. People are encouraged to use the elevators, and the elevators are big enough to fit wheelchairs and gurneys. There are places to sit and rest at the ends of corridors. Doctors offices, on the other hand, even my pain clinic (!) still seem comitted to using bright fluorescent lights. And of course the standards are different for staff versus patients, even though staff memebers certainly may be disabled as well.

TLDR:
--You don't have to choose between the medical and social model
--The medical world could stand to learn some things from the social model and from activists

Forty plus one

Aug. 25th, 2016 08:43 pm
[syndicated profile] loteria_chicana_feed

Posted by cindylu

I wrote these thoughts yesterday morning. I now realize there’s a few similarities between what I wrote on Xavi’s due date and what I feel on Bubble’s due date.

I seem to have skipped the nesting phase. I didn’t have it big with Xavi either, but there was definitely more prep in readying our home.

I’m glad baby didn’t come over the weekend. Xavi’s babysitter was out of town. She’s our plan for when I go in to labor. We don’t have a backup. Unless, of course, baby comes once my parents arrive.

My mom and dad will be here in a week!

I went on maternity leave just as the fall semester was starting. The transition from summer university life to fall has always rankled me and I’m not sad to skip it.

Despite being on leave I’m still doing work from home. A busy summer meant getting work done but not planning as much as I needed to for leave.

I have a prenatal massage today. I double checked with the spa to make sure that I wouldn’t be charged for canceling late if I do go in to labor.

Currently reading A House of My Own: Stories from My Life by Sandra Cisneros and it’s amazing. I’ve already cried about three times. She feels like my wise tía and such a poet in the sense that she writes what others feel.

Part of what bummed me out about Xavi being a week late was waiting through important days. I thought it would be SO cool if he was born on Papá Chepe’s birthday. As the patriarch of a big family he had no birthday twins and it was time for at least one.

Added today

Lots of people ask me if Xavi is excited about becoming a big brother. Before a few days ago, I’d say I didn’t really know. And if he was excited, it wasn’t expressed the way he typically shows (jumping, eyes lighting up in that “oh, boy, oh boy!” sense).

But I think the efforts we’ve been making have helped. He has books about becoming a big brother and having a baby in the home. He’s seen the apartment start to be populated with baby things. On Saturday, he attended a “siblings are special” class at the hospital. We pushed it by scheduling the class just a few days before my due date, but the previous date didn’t work for me due to work. Xavi got to tour the labor and delivery ward again (he went with us the first time we toured), saw a real newborn in the nursery, made a birthday poster for baby, and got to practice helping change a baby’s diaper.

40 weeks

During his recent speech therapy appointment his therapist brought a baby doll. She told Sean that Xavi did really well feeding the baby, brushing hair, hugging and singing baby songs. He was very sweet and gentle.

He’s also started doing a baby act. He does a “wah waaah” cry if we mention a baby and wants to be held in a cradle position. I ask him what baby needs. Diaper change? Feeding? Cuddles? A nap? And he just laughs.

And at a recent baby shower, he gave a 2 month old baby a gentle hug unprompted.

Yesterday, Sean and Xavi went to pick me up at the spa. Xavi asked Sean if they were going to the hospital to get me and baby.

He still doesn’t say, “yes” if you ask if he’s excited. But I think he is.

As for how I’m feeling? No signs of labor starting — that’s what people really want to know. And okay, but uncomfortable as one would expect a woman to feel late in pregnancy. I took long walks while waiting for Xavi but won’t be doing that because it’s hot and humid. Plus, I’m just not that comfortable.

Folk Tales from Korea

Aug. 25th, 2016 01:43 pm
yhlee: Korean tomb art from Silla Dynasty: the Heavenly Horse (Cheonmachong). (Korea cheonmachong)
[personal profile] yhlee
Folk Tales from Korea by Zong In-Sob is a book I had no idea was available on Kindle until, you guessed it, the flood destroyed the old clothbound copy I'd owned since 3rd or 4th grade. It's a collection of 100 folktales gathered from various sources, from old documents to individuals, and I must admit that it's driven me nuts for a couple decades now because the collector uses a completely idiosyncratic (although self-consistent) romanization scheme for Hangeul (Korean) that I have seen used nowhere else, e.g. "cz" for ㅊ. [1] I am almost positive that the old clothbound copy explained the scheme, although it's possible that I'm misremembering. Annoyingly, the Kindle version doesn't include it, so I have to guess at pronunciations based on what I know (or just guess, period).

[1] There are two more-or-less standard romanizations for Korean. The first is McCune-Reischauer, a tweaked/revised version of which is used officially by the South Korean government now. This is what I grew up using. The second is Yale. The Yale system is used by linguists and, as far as I can tell, by no one else. Despite having lived in South Korea for half my childhood, it wasn't until I picked up a book on Korean linguistics in college that I even learned of the Yale system's existence. Please note that individuals' names are frequently not romanized according to either scheme but according to whatever they (or their parents) felt would look best or make things more likely to be pronounced correctly by non-Koreans.

I will say that many of these tales contain hanky-panky that went whoosh! over my head when I read them as a child. There are a lot of instances of a man and a woman sleeping in proximity to each other, a decorous lacuna in the text, and whoosh! the next morning the woman just so happens to be pregnant, usually to her great shame. I had no idea how this was achieved back then.

Or there's this hilarious example of pandering to the delicate male psyche, in story #24:

One day a man made water by the roadside. It happened that at that spot there was a grave level with the ground. That night the man dreamed that a beautiful girl came to him and said, 'To-day you showed me your most precious possession, and now all my bitterness against the world has melted away. You have made it possible for me to travel to the other world, and I am deeply grateful for your kindness.'


HA HA HA HA HA. I'm sure guys just WISH.

When I first read this as a kid, I had no idea what "made water" meant (I would continue to wonder about this euphemism for years) and I certainly had no idea what this "most precious possession" was...

For another completely hilarious example in a completely different direction, we have this charmer, #10 "Onions":

In the very earliest days of human history there was a time when men used to eat one another. This was because in those days men often appeared in the form of cattle, and so were slaughtered for food.


But fear not! Apparently the cure was to eat an onion, which would make a person appear in human form.

?!?!?!

Or there's the one in which a man with a sick mother is told by a monk to boil his son to make a medicinal brew to cure his mother. The man agonizes, but does it. (Filial piety is huge in Korean culture.) His reasoning? He can always produce more sons, but he can't ever replace his mother...

There are also lots of patriarchal bits, like the story in which someone was originally going to be reborn as a prince of China as a reward but a misdemeanor caused him to be "downgraded" to princess. *sigh* And there are a ton of stories about men conning people letting them marry beautiful/well-connected daughters, as one does. *snrk*

And #42 mistakenly cites the turtleboat as "the world's first submarine," when it wasn't a submarine at all.

[personal profile] inkstone, I can't remember the name of that (Korean?) horror movie you mentioned ages ago, with the two sisters (so specific, I know), but the story of Rose and Lotus, on which it is based, is in here too.

Ah, folklore, I love it. While I don't know how much interest this is to people generally, I grew up with some of these stories and have Korean nostalgic fondness for them.

Thank you to the kind person who donated this book! Next in queue is a write-up of Timothy Rice's Ethnomusicology: A Very Short Introduction.

Castle Wall by Murat Can Tonta

Aug. 25th, 2016 04:00 pm
[syndicated profile] grand_master_puzzles_feed

Posted by Murat Can Tonta

Castle Wall by Murat Can Tonta

PDF

Theme: Clue Symmetry and Logic

Author/Opus: This is the 43rd puzzle from our contributing puzzlemaster Murat Can Tonta.

Rules: Standard Castle Wall rules.

Answer String: Enter the length in cells of the horizontal loop segments from left to right in the marked rows, starting at the top. If the loop only has vertical segments in the marked row, enter 0. Separate each row’s entry with a comma.

Time Standards (highlight to view): Grandmaster = 2:15, Master = 3:15, Expert = 6:30

Note: Follow this link for more Castle Wall puzzles. If you are new to this puzzle type, here are our easiest Castle Wall puzzles to get started on.

The post Castle Wall by Murat Can Tonta appeared first on The Art of Puzzles.

(no subject)

Aug. 25th, 2016 01:19 pm
nny: (where the stories are)
[personal profile] nny
So apparently imzy is The New Fandom Thing. Whether that's true or not remains very much to be seen, but I've chosen to get in early and grab my name; if anyone wants an invite, whack your email in the (screened) comments and I'll send one your way. :D

Oh, and if anyone has an Imzy blog or comm, let me know the name and I'll come join up!
[syndicated profile] darths_and_droids_feed

Episode 1397: I Caught a Rare Wookieechu

If you are running a game and one of your players ever expresses a desire to run an adventure some time soon:

  1. It gives you a chance to relax a bit and play as a player instead of a GM.
  2. Even if it goes horribly wrong - especially if it goes horribly wrong - the player will have a better appreciation for how much hard work you put into every session.
  3. Accept the offer before they can retract it. Grab it with all possible appendages as quickly as you can!

Sidetracks - August 25, 2016

Aug. 25th, 2016 01:56 am
helloladies: Gray icon with a horseshoe open side facing down with pink text underneath that says Sidetracks (sidetracks)
[personal profile] helloladies posting in [community profile] ladybusiness
Sidetracks is a collaborative project featuring various essays, videos, reviews, or other Internet content that we want to share with each other. All past and current links for the Sidetracks project can be found in our Sidetracks tag.


Read more... )

On 'How to Write About Trauma'

Aug. 24th, 2016 11:37 pm
[syndicated profile] intersections_feed

Posted by Daniel Hernandez

Been thinking and engaging lots with trauma lately in my journalism, and in reckoning with what so many of us have gone through in Mexico. The terror of losing a loved one, or being abused, or being cast aside by society, rendering trauma as a state of homelessness, for example. This essay by author Saïd Sayrafiezadeh lances through the heart of the matter: I was not gay and I told him so. He would not accept no for an answer. The no was even more evidence that I was gay. Back and forth we went like this. Since there had...

uh huh

Aug. 24th, 2016 07:25 pm
sasha_feather: the back of furiosa's head (furiosa: back of head)
[personal profile] sasha_feather
After my 2nd session of PT, I am still aggravated and thinking of quitting.

While she seemed a bit taken aback that I didn't like the reading, she did manage to roll with it. I said that it was too basic for me and that I have read better books about pain. I said that I did like the part about the body map.

She recommended I try an app in which the user practices Left/Right sorting of body parts; there is some evidence this supports correct functioning of the body map. I explained that I only have a PC, not a smart phone nor tablet. She didn't think this would be a problem.

So I look at the website for the app (which costs about 7 bucks for each body part featured)
http://www.noigroup.com/en/product/btrapp

And it says it's only available for Android and ioS. (Am I wrong about this? plz correct me if so!)

...

...

fuck PT.

Tanya McDowell Sentencing

Aug. 24th, 2016 02:57 pm
[syndicated profile] snopes_feed
Images contrasting the sentencings of white swimmers with that of homeless mother Tanya McDowell lack context necessary to accurately compare the scenarios.

Is It Illegal to Be Fat in Japan?

Aug. 24th, 2016 01:37 pm
[syndicated profile] snopes_feed
A law in Japan requires older citizens to undergo yearly weight exams but does not make it illegal for anyone to be overweight.

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